Learning a new way of Living. Trying to remember to Laugh along the way.
you mention your blood tests done for 'herediatary fructose intolerance' was it that or was it the Gastro diagnosis I guess what I mean is was it the Genetic test that came back Positive? Reason I am asking is I also have EDS 3 recently diagnosed in London Hypermobilty Unit this is also my email I am also on Facebook Aidan Walsh the gold Angel is my profile photo there...thanks so very much I truly wish you all a Cure soon to this Monster of illnesses x x firstname.lastname@example.org
We were diagnosed with fructose malabsorption syndrome. Dietary not hereditary. Although the geneticist did say that we inherited it as part of our EDS it is not actually the deadly hereditary form. We used a breath test to get diagnosed with the fructose issue. We were not offered a blood test for the EDS.